Please read this story about the Teske family by Sandra Martin.
Like the story of Nagui Morcos, Donald Low and many others this story shows why we fight for choice if a competent adult decides that their own life has no further quality.
This article is not an intellectual discussion about our rights under the Charter, or if there are slippery slopes or if life is sacred. It is a heart-wrenching description of a family suffering with Huntington's disease and how each individual from Gwen, the 80 year old matriarch, to her grandchildren, Shelby and Chantelle, both in their early 20's, cope with their relationships, jobs and living conditions in a myriad of different ways while living under the conditions imposed by this unspeakably bad disease.
“Between 10 and 20 years to complete the course,” novelist Ian McEwan writes of the disease’s inexorable march in Saturday, “from the first small alterations of character, tremors in the hands and face, emotional disturbance, including – most notably – sudden, uncontrollable alterations of mood, the helpless jerky dance-like movements, intellectual dilapidation, memory failure, agnosia, apraxia, dementia, total loss of muscular control rigidity sometimes, nightmarish hallucinations and a meaningless end. This is how the brilliant machinery of being is undone by the tiniest of faulty cogs, the insidious whisper of ruin, a single bad idea lodged in every cell, on every chromosome four.”
Why does our Criminal Code provide jail time for people who help loved ones avoid situations like this? It makes no sense and it must change!!!