Life is full of chores: making our beds, changing our socks and doing the dishes. Such chores ought to be done daily for the good of one’s self-esteem! Of course, there are others that have far greater import, but do not crop up so regularly. I refer to making a will and an advanced healthcare plan.
For most of us, making a will is a relatively simple undertaking. Most of us will want to pass our assets on to our spouses and children. Organizing this is not hard, but if we are lazy and overlook it, government officials step in and dispose of our estate according to a formula and charge quite heavily for their efforts. Wills, once made, only need occasional review.
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Making an advanced healthcare plan is more complicated and less certain. Advance care planning is dealing with a moving target unlike making a will, which is relatively static. However, that is no reason for avoiding it. Essentially, what one hopes to achieve is an expression of our personal wishes about what should happen to us if we should fall into any number of medical scenarios. Would we want cardiopulmonary resuscitation (CPR)? Artificial feeding? Intensive care? Obviously, it is very hard to answer such questions definitively. Consider: were we to collapse and stop breathing at aged 62, CPR might make sense. Aged 88, maybe not. It would be the same with parenteral feeding and intensive care.
Dying With Dignity Canada provides downloadable kits that make this problem much simpler, and I strongly advise anyone considering a plan to get one. The kit postulates several theoretical scenarios and asks a series of questions related to various “what if” situations.
Going through the exercise should not be undertaken alone. It is very important to involve one's spouse and close relatives in the process. There is little point in making certain choices that are likely to be strongly opposed by family members because, when the time comes and healthcare professionals are involved, they will err on the side of caution if they detect family disagreement. For example, you may have chosen not to undergo CPR, but at the time of its need, you would be in no position to argue the point. If one of your children insists that everything possible be done for you, the healthcare team will have no option but to perform it. It is also very wise to involve your family doctor in the process because he or she will be able to offer all kinds of useful advice.
It is important to realize that a properly constructed advanced healthcare directive does not have quite the same legal standing as a will. Contesting a will that distributes your assets fairly will almost certainly prove fruitless. Contesting an advanced healthcare directive is much easier.
My personal ACP story
My mother-in-law was very much a going concern well into her nineties. She began to fail as she approached the century mark and had several minor strokes. The family knew she no longer wanted heroic measures performed, but had to remind her nursing home staff of this frequently. Once, she was sent to the local emergency department where the junior physician ordered an MRI to determine whether she had had a cerebral bleed. I arrived and asked the young doctor what he proposed as an encore: brain surgery to drain the haemorrhage? She was then 98 years old and in very poor health, and such a procedure would have been entirely futile. Fortunately, she escaped it and died shortly thereafter. This personal story illustrates just how much one must be on one's guard concerning one's end-of-life healthcare wishes.
Dr. David Amies is a retired doctor in Lethbridge, Alta., and a member of DWD Canada's Physicians Advisory Council.